Community Support Session: Psychosocial Challenges in Rare Diseases

Lecture: Holistic and innovative approaches to psychiatric care in rare diseases
Speaker: Dr. Hamid Alhaj

Lecture: The psychosocial impact of rare diseases among children and adolescents: the role of teachers and parents for psychosocial and educational support
Speaker: Prof. Ghanem Al Bustami

Lecture: Psychiatric support for children with rare diseases: addressing developmental and emotional needs
Speaker: Dr. Muhammad Tahir

Community Support Session: Patient Advocacy for Rare Diseases

Lecture: Yasmin Elsamra Foundation: transforming lives through compassion
Speaker: Mrs. Hanaa El-Sadat

Lecture: Patient-led drug development for a rare disease
Speaker: Mr. Majid Jafar

Lecture: Galactosialidosis, a metabolic disease, and the road to therapy through international collaboration
Speaker: Mr. Cagdas Canbolat

Community Support Session: Media Awareness and Rare Diseases

Lecture: Panel discussion Part 1
Speaker: Dr. Abeer Al Naqbi

Lecture: Panel discussion Part 2
Speaker: Dr. Bassam Darwish

Lecture: Panel discussion Part 3
Speaker: Ms. Ramola Talwar Badam