The 2026 Gene People Online Symposium: Generating the Evidence

Why does strong, solid evidence matter?

Whether it's for investment decisions, access to services, treatment approvals, drug appraisals, or funding for support groups and charities—evidence is the foundation. The need for robust research has never been more critical.

The 2026 Gene People Symposium will explore how that evidence is generated through research, and why it's essential for driving change and improving lives.

Chaired by Kath Bainbridge, Head of Rare Diseases and Emerging Therapies at the Department of Health and Social Care, this important event will bring together:

• People living with genetic conditions
• Patient and support groups
• Researchers and clinicians
• Genetic counsellors and nurses
• Industry leaders
• Policy-makers and more

Together, we will delve into the challenges, opportunities, and future of evidence generation in genetic medicine.

Who should attend this virtual event?

This symposium is ideal for:

• Support groups and patient advocates
• Genetic counsellors, nurses, associates and trainees
• Clinicians and researchers
• Industry professionals working in genetics and rare diseases

Join us to shape the future of genetic healthcare - one evidence-based step at a time.

Fees to attend:

• Condition-specific support groups  - FREE
• Researchers - FREE
• Students - FREE
• Genetic counsellors - FREE
• Other NHS staff - FREE
• Medicines Industry - £200 to be paid via invoice.