MS Data Alliance Stakeholder Engagement Meeting (Wednesday 20 November 2019)
Dear MS community members and supporters,

The University of Hasselt and EMSP (European MS Platform) are proud to announce the organization of the first Multiple Sclerosis Data Alliance (MSDA) Stakeholder Engagement Meeting.

The meeting, hosted by the European Charcot Foundation, will take place on Wednesday 20 November 2019 at the Grand Hotel Dino in Baveno, Italy.

The Multiple Sclerosis Data Alliance (MSDA) is a multi-stakeholder collaboration, in line with and inspired by the Patient Registries Initiative of the European Medicines Agency, working to accelerate research insights for innovative care and treatment for people with MS, by:

  • raising awareness about the importance of research using real world MS data
  • enabling better discovery and access to meaningful real-world MS data (including comparable MRI data) from multiple MS registries and other sources
  • promoting trustworthy and transparent practices in the way real world MS data is used in healthcare.

We would be pleased to welcome you at the first MSDA Stakeholder Engagement Meeting and discuss the benefits of this project for you and your potential involvement.

Kind regards,

Liesbet Peeters and Pieter van Galen