Giampaolo Brichetto
Dr
Italian MS Society Foundation
Dr. Giampaolo Brichetto joined the Italian MS Society Foundation (FISM) on March 2009, where he currently holds the position of Coordinator of Research in Rehabilitation. Giampaolo is 42 years old and has 17 years of Research in Rehabilitation experience in the field of neuro-rehabilitation: Parkinson’s disease, stroke, traumatic brain injury and multiple sclerosis; he worked as Physical Medicine and Rehabilitation MD and then as PhD in Neurosciences for the Department of Neurological Sciences, University of Genova, from 2000 to 2007 and then as Head of Traumatic Brain Injury Unit for Ottavia Ferrero Hospital from 2007 to 2009. His whole carrier effort aimed at improving neurorehabilitation strategies both by integrating traditional rehabilitation techniques with bio-tech devices and cognitive rehabilitation strategies and by improving rehabilitation outcome measures for clinical and research purposes. He is author of more than 30 papers in extenso, published on international peer reviewed journals and more than 100 abstracts published in peer reviewed journals.
Dr
Italian MS Society Foundation
Please find here the Conflict of Interest form.
Luís Brieva
Hospital Universitari Arnau de Vilanova, Lleida
Hospital Universitari Arnau de Vilanova, Lleida
Pedro Carrascal
Multiple Sclerosis Spain
Multiple Sclerosis Spain
Pedro Carrascal is the
CEO of three organisations: EME (Multiple Sclerosis Spain); the Biscay MS
Society and the MS Basque Foundation. He graduated with a Bachelor degree in
Law from the University of Deusto in
Since
2007 Pedro is board member of the MSIF (Multiple Sclerosis International
Federation). In september 2012 Pedro become member of the European Multiple
Sclerosis Platform ( EMSP) Executive Committee, being since this year the
vicepresident of this organisation.
Pedro has extensive
knowledge and awarenesss of the needs of people with MS and the skills and
abilities to develop and manage initiatives to meet those needs. He is also
fully committed to the spanish patient movement and one of the promotors of the
spanish “Neuroalianza” ( spanish alliance of neurodegenerative diseases)
created in 2012 and “Plataforma de Pacientes” (umbrella organization for the
main patients NGOS in Spain) in 2014.
Patient advocay,
management and social innovation are some of his skills.
Please find here the Conflict of Interest form.
Gisela Carrés
FEM - MS Foundation of Catalonia, Barcelona
FEM - MS Foundation of Catalonia, Barcelona
Ulrik Dalgas
Aarhuis University
Aarhuis University
Ulrik Dalgas is an exercise physiologist specialized in rehabilitation of neurological patients. In particular most of his research focuses on the effects of exercise therapy in subjects with multiple sclerosis (MS). His main research covers the effects of different exercise modalities (e.g. resistance training and endurance training) and aspects of exercise therapy related to selected groups of MS patients (e.g. thermo-sensitive patients or fatigued patients). Much of his ongoing research focuses on understanding the effects of exercise on brain function, and he is trying to determine, whether long-term exercise is a disease modifying intervention in MS. Currently, he is board member and secretary for the European organization Rehabilitation in Multiple Sclerosis (RIMS). Finally, he has authored about 70 scientific papers and several book chapters including a contribution to the revised Recommendations on Rehabilitation Services for Persons with MS.
Vincent De Groot
Prof Dr
VUmc Amsterdam
Please find here the Conflict of Interest form.
Prof Dr
VUmc Amsterdam
Vincent de Groot was born in 1971 and obtained his MD degree in 1996. Subsequently, he entered the rehabilitation medicine residency programme, which he combined with his PhD training. In 2004 he started working as a rehabilitation physician at VU University Medical Center Amsterdam. In 2007 he successfully defended his PhD thesis ‘Outcome measurement and functional prognosis in early multiple sclerosis’.
Since September 2014 he has been professor of rehabilitation medicine and chair of the department of rehabilitation medicine at VU University Medical Center Amsterdam. His clinical and research focus is on neurorehabilitation, in particular multiple sclerosis, gait analysis, orthotics of the lower limb and spasticity treatment. He is also deputy instructor of the rehabilitation medicine residency programme and member of the executive board of RIMS (Rehabilitation In Multiple Sclerosis).
Please find here the Conflict of Interest form.
Marcel Dijkers
Dr
Icahn School of Medicine at Mount Sinai, NY; Wayne State University School of Medicine, Detroit
Marcel Dijkers PhD studied sociology in the Netherlands and the USA, and through medical sociology entered the field of rehabilitation research. He is Research Professor of Rehabilitation Medicine at the Icahn School of Medicine at Mount Sinai in New York, NY, and Professor of Physical Medicine and Rehabilitation at Wayne State University in Detroit, MI. He has researched the social and functional consequences of traumatic brain injury and spinal cord injury, the delivery of health services for individuals with these conditions, as well as the determinants of community integration, quality of life and other outcomes. A systematic review of the descriptions of treatments in rehabilitation intervention research reports stimulated an interested in the description and classification of rehabilitation treatments, from which the development of a rehabilitation treatment taxonomy framework resulted. Dr. Dijkers’ research has been supported by grants from the Centers for Disease Control and Prevention and others. He is a past President of the American Congress of Rehabilitation Medicine, sits on the editorial board of the Journal of Head Trauma Rehabilitation, and is a peer reviewer for many other journals. He also regularly serves as proposal reviewer for grant-making public and private organizations, in the USA and overseas.
Dr
Icahn School of Medicine at Mount Sinai, NY; Wayne State University School of Medicine, Detroit
Please find here the Conflict of Interest form.
Birthe Dinesen
Dr
Aalborg University
Dr. Birthe Dinesen is an Associate Professor, Ph.D and Head of Laboratory of Welfare Technologies - Telehealth and Telerehabilitation, SMI, Department of Health Science and Technology, Aalborg University, Denmark. Since 2004, Dr. Dinesen has been doing research within Telehealth and Telerehabilitation. She has been a PI for several clinical trials on telehealth and telerehabilitation. She has published over 50 peer reviewed papers. In 2012, Dr. Dinesen was the initiator of the Transatlantic Telehealth Research Network (TTRN) between Danish and American research institutions and health organizations such as UC Berkeley and the Cleveland Clinic. The TTRN has published the vision paper " Personalised Telehealth in the Future: A Global Research Agenda" in Journal of Medical of Internet Research (Vol 8, No 2, March 2016 - open access). The paper is for inspiration for Dr. Dinesen´s presentation of the RIMS´s conference.
Dr
Aalborg University
Dr. Birthe Dinesen is an Associate Professor, Ph.D and Head of Laboratory of Welfare Technologies - Telehealth and Telerehabilitation, SMI, Department of Health Science and Technology, Aalborg University, Denmark. Since 2004, Dr. Dinesen has been doing research within Telehealth and Telerehabilitation. She has been a PI for several clinical trials on telehealth and telerehabilitation. She has published over 50 peer reviewed papers. In 2012, Dr. Dinesen was the initiator of the Transatlantic Telehealth Research Network (TTRN) between Danish and American research institutions and health organizations such as UC Berkeley and the Cleveland Clinic. The TTRN has published the vision paper " Personalised Telehealth in the Future: A Global Research Agenda" in Journal of Medical of Internet Research (Vol 8, No 2, March 2016 - open access). The paper is for inspiration for Dr. Dinesen´s presentation of the RIMS´s conference.
Piet Eelen
NMSC Melsbroek
NMSC Melsbroek
Christian Enzinger
Prof Dr
Medical University of Graz
Christian Enzinger obtained his medical degree at the Karl-Franzens-University of Graz (Austria) in 1998 and became a Board Certified Neurologist in 2006. He received specific training in neuroimaging as a Research Fellow at the Centre for Functional MRI of the Brain (FMRIB) at the University of Oxford.
He is Associate Professor of Neurology, Deputy Head of the Department of General Neurology at the University Clinic of Graz, Director of the Research Unit for Neuronal Repair and Plasticity at the Medical University of Graz and working in the MS Unit at the Department of Neurology.
He is co-chair of the MAGNIMS group (Magnetic Resonance in Multiple Sclerosis), Member of the Scientific Committee and Elected Member of the Assembly of Delegates of the European Academy of Neurology, and past president of the Austrian Society for Functional MRI. He is also organizing the national MS academy and has contributed to teaching on the field of MS at various international conferences.
He is actively involved in research on MS, at both the national and international level, having published more than 190 papers in peer-reviewed journals. His specific research focus lies on the use of MRI in elucidating the heterogeneity of and studying mechanisms of repair and functional plasticity in MS, ageing, and cerebrovascular disease. He and members of his group have received several prizes in recognition of their scientific work.
Prof Dr
Medical University of Graz
Christian Enzinger obtained his medical degree at the Karl-Franzens-University of Graz (Austria) in 1998 and became a Board Certified Neurologist in 2006. He received specific training in neuroimaging as a Research Fellow at the Centre for Functional MRI of the Brain (FMRIB) at the University of Oxford.
He is Associate Professor of Neurology, Deputy Head of the Department of General Neurology at the University Clinic of Graz, Director of the Research Unit for Neuronal Repair and Plasticity at the Medical University of Graz and working in the MS Unit at the Department of Neurology.
He is co-chair of the MAGNIMS group (Magnetic Resonance in Multiple Sclerosis), Member of the Scientific Committee and Elected Member of the Assembly of Delegates of the European Academy of Neurology, and past president of the Austrian Society for Functional MRI. He is also organizing the national MS academy and has contributed to teaching on the field of MS at various international conferences.
He is actively involved in research on MS, at both the national and international level, having published more than 190 papers in peer-reviewed journals. His specific research focus lies on the use of MRI in elucidating the heterogeneity of and studying mechanisms of repair and functional plasticity in MS, ageing, and cerebrovascular disease. He and members of his group have received several prizes in recognition of their scientific work.
Sofie Ferdinand
MS Center Melsbroek
MS Center Melsbroek
Peter Feys
Prof Dr
Biomedisch Onderzoeksinstituut (BIOMED)
Peter Feys (PhD KULeuven, 2004) is professor in rehabilitation sciences and physiotherapy at Hasselt University, and head of the rehabilitation department within the faculty of medicine and life sciences. He is responsible for education in neurological rehabilitation in a 3 years Bac and 2 years Ma educational program. He is member of inter-university steering committees on rehabilitation sciences and physiotherapy as well as occupational therapy.
His inter-disciplinary research is focused on the assessment and rehabilitation for gait and upper limb function in persons with neurological conditions. It comprises investigations of motor fatigue, motor imagery, music-based entrainment and sonification, cognitive-motor interference, the use of technology, and community self-directed training. Neuro-imaging is performed to understand the impact of interventions on neural function and structure. The research is performed in persons with Multiple sclerosis and secondary stroke.
Peter Feys has published over 80 peer- reviewed articles in international clinical neurological, imaging, and rehabilitation journals. Funding for research has been obtained from the Flemish research foundation, European Interreg program and charities such as the Flemish MS support fund, Promobilia, RIMS and the Progressive MS Alliance besides university grants. https://www.ncbi.nlm.nih.gov/pubmed/?term=feys+p
Since 2011, Peter Feys has been president of RIMS (Rehabilitation in MS; www.euRIMS.org), a European network of best practice and research. He is an editorial board member of ‘Multiple Sclerosis Journal’ as well as ‘Neurorehabilitation and Neural Repair’. He has served as management committee member in the COST action TD1006 (European Network on Robotics for NeuroRehabilitation, 2011-15). In addition, he is secretary of ‘Move to Sport’ (www.movetosport.be) and member of the Flemish MS Support fund. Previously, Peter Feys was member of the Italian MS Society review board.
Please find here the Conflict of Interest form.
Prof Dr
Biomedisch Onderzoeksinstituut (BIOMED)
Peter Feys (PhD KULeuven, 2004) is professor in rehabilitation sciences and physiotherapy at Hasselt University, and head of the rehabilitation department within the faculty of medicine and life sciences. He is responsible for education in neurological rehabilitation in a 3 years Bac and 2 years Ma educational program. He is member of inter-university steering committees on rehabilitation sciences and physiotherapy as well as occupational therapy.
His inter-disciplinary research is focused on the assessment and rehabilitation for gait and upper limb function in persons with neurological conditions. It comprises investigations of motor fatigue, motor imagery, music-based entrainment and sonification, cognitive-motor interference, the use of technology, and community self-directed training. Neuro-imaging is performed to understand the impact of interventions on neural function and structure. The research is performed in persons with Multiple sclerosis and secondary stroke.
Peter Feys has published over 80 peer- reviewed articles in international clinical neurological, imaging, and rehabilitation journals. Funding for research has been obtained from the Flemish research foundation, European Interreg program and charities such as the Flemish MS support fund, Promobilia, RIMS and the Progressive MS Alliance besides university grants. https://www.ncbi.nlm.nih.gov/pubmed/?term=feys+p
Since 2011, Peter Feys has been president of RIMS (Rehabilitation in MS; www.euRIMS.org), a European network of best practice and research. He is an editorial board member of ‘Multiple Sclerosis Journal’ as well as ‘Neurorehabilitation and Neural Repair’. He has served as management committee member in the COST action TD1006 (European Network on Robotics for NeuroRehabilitation, 2011-15). In addition, he is secretary of ‘Move to Sport’ (www.movetosport.be) and member of the Flemish MS Support fund. Previously, Peter Feys was member of the Italian MS Society review board.
Please find here the Conflict of Interest form.
Jenny Freeman
Dr
University of Plymouth
Jenny Freeman is an Associate Professor (Reader) in Physiotherapy and Rehabilitation within the Faculty of Health and Human Sciences at Plymouth University. Her research programme in MS centres on the development and evaluation of complex rehabilitation interventions; reflecting the priority given by health services to providing evidence based management. A key focus is on the rehabilitation of impaired mobility and balance. Her research is grounded on her longstanding clinical expertise in neurological physiotherapy, for which she has an ongoing clinical commitment.
Dr
University of Plymouth
Jenny Freeman is an Associate Professor (Reader) in Physiotherapy and Rehabilitation within the Faculty of Health and Human Sciences at Plymouth University. Her research programme in MS centres on the development and evaluation of complex rehabilitation interventions; reflecting the priority given by health services to providing evidence based management. A key focus is on the rehabilitation of impaired mobility and balance. Her research is grounded on her longstanding clinical expertise in neurological physiotherapy, for which she has an ongoing clinical commitment.
Ingrid Galán
MS Centre of Catalonia (Cemcat)
MS Centre of Catalonia (Cemcat)
Jordi Gich
Hospital Universitari Josep Trueta, Girona
Hospital Universitari Josep Trueta, Girona
Päïvï Hämäläinen
Prof
Finnish Neurosociety / Masku Neurological Rehabilitation Centre
Prof
Finnish Neurosociety / Masku Neurological Rehabilitation Centre
Päivi Hämäläinen has worked as a neuropsychologist in Masku neurological rehabilitation centre, owned by the Finnish Neurosociety (former MS Society), since 1990. Since 1999, she has worked as the head of the Psychology department and since the beginning of March, 2011 as the head of the rehabilitation centre. Since 2005 she has acted as an adjunct professor in the Psychology Department in the University of Turku. She is actively involved both in national and international neuropsychological activities. She is a member of the executive board of the Rehabilitation in Multiple Sclerosis (RIMS) and an active member of the International MS and Cognition Society (IMSCogS). Her main research interests are cognitive deficits in MS, especially cognitive fatigue and holistic neuropsychological rehabilitation in MS. She acts as a supervisor for several Finnish neuropsychologists keen on cognition and MS.
Please find here the Conflict of Interest form.Christoph Heesen
Prof Dr
Universitätsklinikum Hamburg-Eppendorf
C. Heesen is head of the MS day hospital at the University Medical Centre Hamburg affiliated to the Department of Neurology and the Institute of Neuroimmunology and Multiple Sclerosis (INIMS). He has 20 years of clinical expertise in MS management with participation in numerous phase-II and phase-III trials since 1995. He has led investigator-initiated treatment trials at the INIMS (HAGIL, ETIMS, SABA, RESCON, the later 2 being multicentre trials). C. Heesen is working on evidence-based patient information and patient autonomy. He has a strong interest in behavioural interventions with a focus on exercise studies and web based cognitive behavioural treatments. He is member of the Hamburg Chamber of Physicians Ethics committee and member of the executive board of RIMS, the European network of MS rehabilitation centres.
Prof Dr
Universitätsklinikum Hamburg-Eppendorf
C. Heesen is head of the MS day hospital at the University Medical Centre Hamburg affiliated to the Department of Neurology and the Institute of Neuroimmunology and Multiple Sclerosis (INIMS). He has 20 years of clinical expertise in MS management with participation in numerous phase-II and phase-III trials since 1995. He has led investigator-initiated treatment trials at the INIMS (HAGIL, ETIMS, SABA, RESCON, the later 2 being multicentre trials). C. Heesen is working on evidence-based patient information and patient autonomy. He has a strong interest in behavioural interventions with a focus on exercise studies and web based cognitive behavioural treatments. He is member of the Hamburg Chamber of Physicians Ethics committee and member of the executive board of RIMS, the European network of MS rehabilitation centres.
Jelka Jansa
University Medical Centre Ljubljana
Born in Ljubljana, Slovenia in 1964, and finished Occupational therapy education in Ljubljana in 1985. In 1997, she completed MSc study at the University of East London in London under Britisch Council and Tempus Phare Scholarship. In 1986, she spent six months at the Royal Hospital for Neurological Disabilities in Putney, London. In 1987, she has become the first occupational therapist at the University Medical Centre Ljubljana, Neurology Hospital, Ljubljana where she is still working and dealing with neurological patients. Her main responsibilities are clinical work, research and fieldwork education. Her main interest has been occupational therapy assessment, both qualitative and quantitative. Since 2015 she is Chair of SIG Occupation within RIMS.
Please find here the Conflict of Interest form.
University Medical Centre Ljubljana
Born in Ljubljana, Slovenia in 1964, and finished Occupational therapy education in Ljubljana in 1985. In 1997, she completed MSc study at the University of East London in London under Britisch Council and Tempus Phare Scholarship. In 1986, she spent six months at the Royal Hospital for Neurological Disabilities in Putney, London. In 1987, she has become the first occupational therapist at the University Medical Centre Ljubljana, Neurology Hospital, Ljubljana where she is still working and dealing with neurological patients. Her main responsibilities are clinical work, research and fieldwork education. Her main interest has been occupational therapy assessment, both qualitative and quantitative. Since 2015 she is Chair of SIG Occupation within RIMS.
Please find here the Conflict of Interest form.
María Jesús Arévalo
MS Centre of Catalonia (Cemcat)
MS Centre of Catalonia (Cemcat)
Jürg Kesselring
Prof Dr
Rehabilitation Centre Valens Switzerland
Head Physician, Kliniken Valens; Member of the ICRC; Fellow of the Royal College of Physicians.
Jürg Kesselring (born in 1951) is Head of the Department for Neurology and Neuro-Rehabilitation at the Kliniken Valens, Switzerland. He is a member of the Assemblée of the International Committee of the Red Cross (ICRC), member of the Boards of the Schweizerische Hirnliga, the International Music Academy in Liechtenstein, and President of the Musical Festival Next Generation in Bad Ragaz.
Previously, he served as President of the Swiss Multiple Sclerosis Society, the International Medical and Scientific Board of Multiple Sclerosis International Federation (MSIF), of the Research Committee on Demyelination of the World Health Organization (WHO) and of the World Federation of Neurology (WFN). Jürg Kesselring teaches at the ETH Zurich und at the Universities of Zurich, Bern und Krems. He has published more than 220 papers, 15 scientific books, and 3 poetry books.
For his extensive scientific, medical, musical, and charitable service he has been honoured, e.g. by receiving the Golden needle of Honour for International Achievements and the Queckenstedt Price for scientific research from the German Multiple Sklerose Society. Visiting Professor at the University of Melbourne in 2012, 2014, and 2015. Margrit Egnér Prize 2015 „for outstanding achievements in anthropological philosophy and psychology”. First Honorary President of the Swiss Multiple Sclerosis Society, Lifetime Honorary Board Member of Multiple Sclerosis International Federation (MSIF) und Fellow of the Royal College of Physicians.
Jürg Kesselring is married, father of three, and a passionate amateur cello-player.
Prof Dr
Rehabilitation Centre Valens Switzerland
Head Physician, Kliniken Valens; Member of the ICRC; Fellow of the Royal College of Physicians.
Jürg Kesselring (born in 1951) is Head of the Department for Neurology and Neuro-Rehabilitation at the Kliniken Valens, Switzerland. He is a member of the Assemblée of the International Committee of the Red Cross (ICRC), member of the Boards of the Schweizerische Hirnliga, the International Music Academy in Liechtenstein, and President of the Musical Festival Next Generation in Bad Ragaz.
Previously, he served as President of the Swiss Multiple Sclerosis Society, the International Medical and Scientific Board of Multiple Sclerosis International Federation (MSIF), of the Research Committee on Demyelination of the World Health Organization (WHO) and of the World Federation of Neurology (WFN). Jürg Kesselring teaches at the ETH Zurich und at the Universities of Zurich, Bern und Krems. He has published more than 220 papers, 15 scientific books, and 3 poetry books.
For his extensive scientific, medical, musical, and charitable service he has been honoured, e.g. by receiving the Golden needle of Honour for International Achievements and the Queckenstedt Price for scientific research from the German Multiple Sklerose Society. Visiting Professor at the University of Melbourne in 2012, 2014, and 2015. Margrit Egnér Prize 2015 „for outstanding achievements in anthropological philosophy and psychology”. First Honorary President of the Swiss Multiple Sclerosis Society, Lifetime Honorary Board Member of Multiple Sclerosis International Federation (MSIF) und Fellow of the Royal College of Physicians.
Jürg Kesselring is married, father of three, and a passionate amateur cello-player.
Daphne Kos
Dr
KU Leuven
Daphne Kos graduated as occupational therapist (OT) and movement scientist. She worked in the National MS Center in Melsbroek (B) as OT practitioner and researcher and studied fatigue management and assessment in people with multiple sclerosis in her PhD project.
Dr
KU Leuven
Daphne Kos graduated as occupational therapist (OT) and movement scientist. She worked in the National MS Center in Melsbroek (B) as OT practitioner and researcher and studied fatigue management and assessment in people with multiple sclerosis in her PhD project.
Currently she is professor and co-manager of the OT bachelor and master programme in AP University College Antwerp and in KU Leuven (interuniversity programme with Ghent, Hasselt and Antwerp). Her research domain is situated in the area of fatigue, occupational performance and assessment, mainly in multiple sclerosis.
Daphne Kos is executive board member of the European organisation for rehabilitation in MS (RIMS).
Please find here the Conflict of Interest form.
Please find here the Conflict of Interest form.
Laura Lopes
Dr
AISM Italy
Dr
AISM Italy
Jan Mehrholz
Prof Dr
Klinik Bavaria Kreischa
Professor Jan Mehrholz is head of the scientific institute in Kreischa, Germany. He works as a clinical researcher and as a professor for physiotherapy, Hochschule Gera, Germany. He is Privatdozent (‘associate professor’) for Public Health and supervisor of MD and PhD students at the Faculty of Medicine of the Technical University, Dresden, Germany. He is lecturing neurosciences, neurorehabilitation, evidence based practice, applied statistics, and public health.
He works for three Cochrane Collaboration Groups and has published more than fifteen Cochrane publications (full reviews, updates and protocols). His research relates to evidence-based stroke rehabilitation, Parkinson’s disease, spinal cord, critical illness polyneuropathy and myopathy and other neurological diseases.
He is associate editor of the Cochrane Stroke Review Group in Edinburgh and also editor of the journal ‘neuroreha’, Thieme Publisher, Germany.
Please find here the Conflict of Interest form.
Prof Dr
Klinik Bavaria Kreischa
Professor Jan Mehrholz is head of the scientific institute in Kreischa, Germany. He works as a clinical researcher and as a professor for physiotherapy, Hochschule Gera, Germany. He is Privatdozent (‘associate professor’) for Public Health and supervisor of MD and PhD students at the Faculty of Medicine of the Technical University, Dresden, Germany. He is lecturing neurosciences, neurorehabilitation, evidence based practice, applied statistics, and public health.
He works for three Cochrane Collaboration Groups and has published more than fifteen Cochrane publications (full reviews, updates and protocols). His research relates to evidence-based stroke rehabilitation, Parkinson’s disease, spinal cord, critical illness polyneuropathy and myopathy and other neurological diseases.
He is associate editor of the Cochrane Stroke Review Group in Edinburgh and also editor of the journal ‘neuroreha’, Thieme Publisher, Germany.
Please find here the Conflict of Interest form.
Xavier Montalban
Prof
Prof
Paola Mosconi
Dr
IRCCS Mario Negri Institute
Paola Mosconi is a biological scientist (1982 University of Milano) with a post-doctoral degree in Pharmacological Research. She is at present Head of the “Laboratory for medical research and consumer involvement” of the department of Public Health at the IRCCS Mario Negri Institute.
Please find here the Conflict of Interest form.
Dr
IRCCS Mario Negri Institute
Paola Mosconi is a biological scientist (1982 University of Milano) with a post-doctoral degree in Pharmacological Research. She is at present Head of the “Laboratory for medical research and consumer involvement” of the department of Public Health at the IRCCS Mario Negri Institute.
Paola Mosconi coordinated several research projects on issues pertaining lay people and patient involvement in health care debate and outcome research. She published articles in leading international and national journals.
Significant experiences: development of research methods and strategies to involve lay people, patients or their associations, such as consensus conference, jury of citizens, online surveys and development of shared educational tools; training for patient’s organizations on methodological aspects of clinical research and quality of information; studies for estimate the type of information on diseases and treatments received by patients; set-up of websites targeted on consumers/patients www.partecipasalute.it, www.fondazionemattioli.it; www.ecranproject.eu; studies for evaluate the consumers’ level of satisfaction with the health services and cure; projects on the assessment of Quality of Life in randomised clinical trials or in epidemiological survey; translation and cultural adaptation of questionnaires for Quality of Life.
Please find here the Conflict of Interest form.
Raul Pelayo
Dr
Guttmann Institute
Dr
Guttmann Institute
Iris-Katharina Penner
Prof Dr
Heinrich Heine University, Duesseldorf Germany
Prof. Penner is a cognitive psychologist and neuroscientist. She studied in Germany at the Universities of Bonn and Berlin and received her diploma in Psychology at the Free University of Berlin. She successfully completed her PhD at the Neuroradiology Department of the University Hospital Basel on the topic „cognitive and functional changes in patients with multiple sclerosis”. From 2003 to 2009 Prof. Penner worked as senior scientist at the Department of Cognitive Psychology and Methodology where she was scientifically engaged in cognition, fatigue and cognitive rehabilitation in MS. In 2009 she received her postdoctoral lecture qualification. From 2009 to April 2015 she worked as senior scientist and lecturer at the University of Basel and in addition in private praxis at the Neurozentrum Zürich with a focus on neuropsychological assessments in patients with neuroinflammatory and neurodegenerative diseases. In May 2015 Prof. Penner moved to the Neurology Department of the Heinrich-‐Heine University in Düsseldorf and founded the COGITO Center for Applied Neurocognition and Neuropsychological Research.Prof. Penner is a nationally and internationally recognized expert in the field of cognition and fatigue in MS. She developed the fatigue scale for motor and cognitive functions (FSMC), published numerous scientific articles and book chapters and is member of several professional and scientific societies. Her clinical and scientific focus is concentrated on cognitive processes and brain plasticity in neurodegenerative and inflammatory diseases of the human brain. From 2013 to 2015 she was the President of the International MS Cognition Society (IMSCOGS).
Please find here the Conflict of Interest form.
Prof Dr
Heinrich Heine University, Duesseldorf Germany
Prof. Penner is a cognitive psychologist and neuroscientist. She studied in Germany at the Universities of Bonn and Berlin and received her diploma in Psychology at the Free University of Berlin. She successfully completed her PhD at the Neuroradiology Department of the University Hospital Basel on the topic „cognitive and functional changes in patients with multiple sclerosis”. From 2003 to 2009 Prof. Penner worked as senior scientist at the Department of Cognitive Psychology and Methodology where she was scientifically engaged in cognition, fatigue and cognitive rehabilitation in MS. In 2009 she received her postdoctoral lecture qualification. From 2009 to April 2015 she worked as senior scientist and lecturer at the University of Basel and in addition in private praxis at the Neurozentrum Zürich with a focus on neuropsychological assessments in patients with neuroinflammatory and neurodegenerative diseases. In May 2015 Prof. Penner moved to the Neurology Department of the Heinrich-‐Heine University in Düsseldorf and founded the COGITO Center for Applied Neurocognition and Neuropsychological Research.Prof. Penner is a nationally and internationally recognized expert in the field of cognition and fatigue in MS. She developed the fatigue scale for motor and cognitive functions (FSMC), published numerous scientific articles and book chapters and is member of several professional and scientific societies. Her clinical and scientific focus is concentrated on cognitive processes and brain plasticity in neurodegenerative and inflammatory diseases of the human brain. From 2013 to 2015 she was the President of the International MS Cognition Society (IMSCOGS).
Please find here the Conflict of Interest form.
Diane Playford
Dr
UCL London
Dr
UCL London
Jana Pöttgen
Dr
University of Medical Center, Hamburg Eppendorf
Dr. Jana Pöttgen studied psychology at the University of Hamburg and received her diploma in 2009. Since 2006 she is engaged in neuropsychological assessments and neuropsychiatric research in multiple sclerosis at the Multiple Sclerosis Day Hospital and Outpatient Clinic at the University Medical Centre Hamburg-Eppendorf. She is interested in cognitive behavioral interventions in multiple sclerosis and the development and validation of neuropsychiatric outcome parameter. She developed a metacognitive training program to treat specific neuropsychiatric impairment in multiple sclerosis (e.g. depression, fatigue, social cognition), and is also involved in the development and research of online treatment of neuropsychiatric domains in multiple sclerosis as depression but also of fatigue.
Please find here the Conflict of Interest form.
Dr
University of Medical Center, Hamburg Eppendorf
Dr. Jana Pöttgen studied psychology at the University of Hamburg and received her diploma in 2009. Since 2006 she is engaged in neuropsychological assessments and neuropsychiatric research in multiple sclerosis at the Multiple Sclerosis Day Hospital and Outpatient Clinic at the University Medical Centre Hamburg-Eppendorf. She is interested in cognitive behavioral interventions in multiple sclerosis and the development and validation of neuropsychiatric outcome parameter. She developed a metacognitive training program to treat specific neuropsychiatric impairment in multiple sclerosis (e.g. depression, fatigue, social cognition), and is also involved in the development and research of online treatment of neuropsychiatric domains in multiple sclerosis as depression but also of fatigue.
Please find here the Conflict of Interest form.
Lluís Ramió-Torrenta
University of Girona, Hospital University Josep Trueta
University of Girona, Hospital University Josep Trueta
Marta Renom
Cemcat Barcelona
Cemcat Barcelona
Marta Renom is a speech and language pathologist that works since 1996 in an MS rehabilitation unit in Barcelona (today named UneR, in Cemcat) and since 1995 in the Hospital de la Santa Creu i Sant Pau (Department of Physical and Medical Rehabilitation) also in Barcelona. She was born in 1968 in Vic (Barcelona). She received her diploma in German Philology in 1991 from Universitat de Barcelona and in Speech and Language Pathology in 1995 from Universitat Autònoma de Barcelona. Beside her clinical work, she has experience in teaching (Universitat Autònoma de Barcelona, Institut del Teatre de Barcelona). She has participated in several research projects on cognitive rehabilitation in Multiple Sclerosis, the last one with use of fMRI (Cemcat). She is member and has been co-chair of the Communication & Swallowing special Interest Group within the Rehabilitation in Multiple Sclerosis Society (RIMS) and has participated as coordinator in the validation of the ICF Core Set for MS among speech and language pathologists (Ludwig Maximilians University – Munich, Germany). She is currently involved in a project of clinical use of telemedicine applied to the rehabilitation of dysphagia (Hospital de la Santa Creu i Sant Pau) and in the translation and validation of the Spanish and Dutch versions of the DYMUS questionnaire for the assessment of dysphagia in multiple sclerosis (Cemcat).
Anders Romberg
Dr
Masku Neurological Rehabilitation Centre
Anders Romberg, Physical Therapist (1985) and Doctor in Health Sciences, is employed at the Masku Neurological Rehabilitation Centre in Finland. Currently, he is involved both in clinical as well as research work in persons with MS. His scientific merits include over 20 publications in peer-reviewed journals of neurology and rehabilitation. Dr. Romberg has been an active RIMS member since late 1990s and has participated in a number of RIMS-driven multicenter studies. From 2012 he has served as a chairman for the SIG Mobility group.
Dr
Masku Neurological Rehabilitation Centre
Anders Romberg, Physical Therapist (1985) and Doctor in Health Sciences, is employed at the Masku Neurological Rehabilitation Centre in Finland. Currently, he is involved both in clinical as well as research work in persons with MS. His scientific merits include over 20 publications in peer-reviewed journals of neurology and rehabilitation. Dr. Romberg has been an active RIMS member since late 1990s and has participated in a number of RIMS-driven multicenter studies. From 2012 he has served as a chairman for the SIG Mobility group.
Leonie Ruhaak
Nieuw Unicum, The Netherlands
Nieuw Unicum, The Netherlands
Leonie Ruhaak is a speech and language therapist and researcher at Nieuw Unicum, Zandvoort, an institution for physically disabled people and specialized in the care and treatment of multiple sclerosis in the advanced stages of the disease. She was educated as a speech and language therapist at University of Applied Sciences Utrecht (2011-2013). She received her master’s degree in Clinical Language, Speech and Hearing Sciences at University Utrecht in 2014.
Leonie Ruhaak is chair of the special interest group on ‘Communication and Swallowing’ of the RIMS. Currently, she works on the DYMUS project (RIMS GRANT Program) besides her clinical work as a speech and language therapist.
Samuel Sánchez
MS Centre of Catalonia (Cemcat)
MS Centre of Catalonia (Cemcat)
Jaume Sastre-Garriga
Prof
MS Centre of Catalonia (Cemcat)
Please find here the Conflict of Interest form.
Prof
MS Centre of Catalonia (Cemcat)
Dr. Jaume Sastre-Garriga received his MD at the University of Barcelona, his PhD at the Universitat Autònoma de Barcelona and trained as a neurologist at the Neurology Department, Hospital Vall d’Hebron. From June 2002 to December 2004 he was a awarded a grant from the Spanish Ministry of Health and held a post as a clinical research fellow at the MRI and Neurorehabilitation units, Institute of Neurology, London. In 2004 and 2005 was awarded by the Spanish Society of Neurology (SEN) the prize for the best Spanish paper in an international neurological journal.
From January 2005 to February 2007 Dr. Sastre-Garriga was Medical Director of the neurorehabilitation centres of the MS Foundation in Catalonia. Since March 2007 he works as a clinical neurologist at the Department of Neurology / Neuroimmunology, and Deputy Director of the MS Centre of Catalonia (Cemcat), Hospital Vall d’Hebron (Barcelona).
He is a current member of the steering committee of MAGNIMS, the executive board of RIMS, the Editorial Board of the Multiple Sclerosis Journal and has recently been appointed Director of Revista de Neurología (Impact Factor 2015: 0,68). Dr. Sastre-Garriga is coauthor of 113 medlineindexed papers (h-index: 32 – SCOPUS).
From January 2005 to February 2007 Dr. Sastre-Garriga was Medical Director of the neurorehabilitation centres of the MS Foundation in Catalonia. Since March 2007 he works as a clinical neurologist at the Department of Neurology / Neuroimmunology, and Deputy Director of the MS Centre of Catalonia (Cemcat), Hospital Vall d’Hebron (Barcelona).
He is a current member of the steering committee of MAGNIMS, the executive board of RIMS, the Editorial Board of the Multiple Sclerosis Journal and has recently been appointed Director of Revista de Neurología (Impact Factor 2015: 0,68). Dr. Sastre-Garriga is coauthor of 113 medlineindexed papers (h-index: 32 – SCOPUS).
Please find here the Conflict of Interest form.
Alessandra Solari
Dr
Instituto Neurologico Carlo Besta
Alessandra Solari is Head of the Unit of Neuroepidemiology, Foundation IRCCS Neurological Institute C. Besta of Milan, Italy. She got her MD (summa cum laude) and Degree in Neurology (summa cum laude) at the School of Medicine of the University of Parma, Italy.
Dr. Solari’s main area of research is the validation of instruments and outcome measures (chiefly patient-reported outcome measures, PROs) for clinical, epidemiologic, and quality of care studies in neurological diseases, particularly multiple sclerosis (MS). Her other main interests are: the design and conduction of randomised controlled trials (RCT) on complex interventions; and shared decision making in MS.
PROs: Dr. Solari validated linguistically several questionnaires into Italian (e.g. the 54-item MS Quality of Life, MSQOL-54 - most-used disease-specific health-related quality of life questionnaire; the Chicago Multiscale Depression Inventory, CMDI) and coordinated multi-lingual adaptations (e.g. of the Control Preference Scale, CPS). Dr. Solari’s team produced the MS knowledge questionnaire (MSKQ) for patients and their significant others, now available in 8 languages, and a questionnaire on satisfaction with communication of the MS diagnosis (COSM). She developed an abbreviated version of the MSQOL-54, also available in electronic format (eMSQOL-29).
RCT on complex interventions: Dr. Solari leaded the following multicentre projects using mixed methodologies and a multi-phased approach: the “Sapere Migliora” information aid for newly diagnosed MS patients; the Palliative Network for Severely Affected Adults with MS in Italy (PeNSAMI) study, on the effectiveness of a home-based palliative care service. The project “ManTra” (Managing the Transition - A Multifaceted Resource for Persons with Secondary Progressive MS and their Health Professionals) is ongoing.
Shared decision making: From 2010, Dr. Solari is coordinating with Prof. C Heesen (University of Hamburg) an international collaborative project on empowering of MS patients and improving the skills of health professionals caring for MS (AutoMS project), and the Special Interest Group “Patient Autonomy”Rehabilitation in MS Network (RIMS, www.eurims.org).
Member of the Scientific Committee of the Italian MS Society Foundation (FISM) from 2008, and of the RIMS Executive Board of from 2011. Member of the Italian Neurology Society from 1999, and of the European Academy of Neurology (EAN) from 2016, she’s leading the task force of the EAN Guideline on Palliative Care of People with Severe MS. Dr. Solari’s work has been published in over 150 peer reviewed journals and edited books. including Lancet Neurology, Neurology, Brain, Journal of Neurology Neurosurgery Psychiatry, and Multiple Sclerosis Journal.
Please find here the Conflict of Interest form.
Dr
Instituto Neurologico Carlo Besta
Alessandra Solari is Head of the Unit of Neuroepidemiology, Foundation IRCCS Neurological Institute C. Besta of Milan, Italy. She got her MD (summa cum laude) and Degree in Neurology (summa cum laude) at the School of Medicine of the University of Parma, Italy.
Dr. Solari’s main area of research is the validation of instruments and outcome measures (chiefly patient-reported outcome measures, PROs) for clinical, epidemiologic, and quality of care studies in neurological diseases, particularly multiple sclerosis (MS). Her other main interests are: the design and conduction of randomised controlled trials (RCT) on complex interventions; and shared decision making in MS.
PROs: Dr. Solari validated linguistically several questionnaires into Italian (e.g. the 54-item MS Quality of Life, MSQOL-54 - most-used disease-specific health-related quality of life questionnaire; the Chicago Multiscale Depression Inventory, CMDI) and coordinated multi-lingual adaptations (e.g. of the Control Preference Scale, CPS). Dr. Solari’s team produced the MS knowledge questionnaire (MSKQ) for patients and their significant others, now available in 8 languages, and a questionnaire on satisfaction with communication of the MS diagnosis (COSM). She developed an abbreviated version of the MSQOL-54, also available in electronic format (eMSQOL-29).
RCT on complex interventions: Dr. Solari leaded the following multicentre projects using mixed methodologies and a multi-phased approach: the “Sapere Migliora” information aid for newly diagnosed MS patients; the Palliative Network for Severely Affected Adults with MS in Italy (PeNSAMI) study, on the effectiveness of a home-based palliative care service. The project “ManTra” (Managing the Transition - A Multifaceted Resource for Persons with Secondary Progressive MS and their Health Professionals) is ongoing.
Shared decision making: From 2010, Dr. Solari is coordinating with Prof. C Heesen (University of Hamburg) an international collaborative project on empowering of MS patients and improving the skills of health professionals caring for MS (AutoMS project), and the Special Interest Group “Patient Autonomy”Rehabilitation in MS Network (RIMS, www.eurims.org).
Member of the Scientific Committee of the Italian MS Society Foundation (FISM) from 2008, and of the RIMS Executive Board of from 2011. Member of the Italian Neurology Society from 1999, and of the European Academy of Neurology (EAN) from 2016, she’s leading the task force of the EAN Guideline on Palliative Care of People with Severe MS. Dr. Solari’s work has been published in over 150 peer reviewed journals and edited books. including Lancet Neurology, Neurology, Brain, Journal of Neurology Neurosurgery Psychiatry, and Multiple Sclerosis Journal.
Please find here the Conflict of Interest form.
James F. Sumowski
Prof
Prof
Mar Tintoré
Dr
MS Centre of Catalonia (Cemcat)
Mar Tintoré MD, PhD is Senior Consultant at the Multiple Sclerosis Centre of Catalonia (Cemcat) and clinical chief of the Neurology/Neuroimmunology Department at Vall d’Hebron University Hospital in Barcelona, Spain. She also serves on the Clinical Ethics Committee of the Vall d'Hebron University Hospital. Dr Tintoré’s main research interests are prognostic factors, paediatric MS, gender aspects of MS, treatment of the disease and bioethics. She is member of the Editorial Board of the Multiple Sclerosis Journal and co-editor of the journal Multiple Sclerosis Journal ETC. She has published more than 190 papers on peer reviewed journals and has an h-index=38.
Dr
MS Centre of Catalonia (Cemcat)
Mar Tintoré MD, PhD is Senior Consultant at the Multiple Sclerosis Centre of Catalonia (Cemcat) and clinical chief of the Neurology/Neuroimmunology Department at Vall d’Hebron University Hospital in Barcelona, Spain. She also serves on the Clinical Ethics Committee of the Vall d'Hebron University Hospital. Dr Tintoré’s main research interests are prognostic factors, paediatric MS, gender aspects of MS, treatment of the disease and bioethics. She is member of the Editorial Board of the Multiple Sclerosis Journal and co-editor of the journal Multiple Sclerosis Journal ETC. She has published more than 190 papers on peer reviewed journals and has an h-index=38.
Paul Van Asch
Joan Vidal
MD, PhD
Institut Guttmann, Barcelona
MD, PhD
Institut Guttmann, Barcelona
Joan
Vidal, holds a PhD in Medicine from the Universitat de Barcelona (UB), is
Head of the Spinal Cord Injuries Unit of Institut Guttmann in Barcelona,
Hospital of Neurorehabilitation. Specialist physician in Physical Medicine and
Rehabilitation.
He is an active researcher in the field of regenerative medicine. He has published more than 90 papers in national and international magazines. In addition, he is a member of the NEUROCEL research networks of TERCEL (Cellular Therapy network of the Instituto de Salud Carlos III) and the NEUROTEC (Neuro-technology for assistance and rehabilitation).
In 2016 has been appointed Teaching Director of the Guttmann University Institute, University UAB.
Petra Wagman
Dr
Jönköping University, School of Health and Welfare
Petra Wagman is a registered occupational therapist, senior lecturer and program coordinator of the occupational therapy program at Jönköping University, Sweden. She took her PhD in 2012 with the thesis ”Conceptualizing life balance from an empirical and occupational therapy perspective”. In this, she explored the concepts “life balance” and “occupational balance” from the perspectives of working adults and in relation to occupational therapy. Her research interest concerns the relationship between what people do, what they think about what they do, and health and well-being. This encompasses all levels - from the individual’s health to the global consequences of human everyday activities. She is also interested in issues of justice and sustainable development.One of Petra Warman’s research areas relates to occupational balance i.e. people’s perceptions of their amount and variation between different activities in everyday life. She is one of the developer of the instrument Occupational Balance Questionnaire (OBQ) which measures self-rated occupational balance.
Please find here the Conflict of Interest form.
Dr
Jönköping University, School of Health and Welfare
Petra Wagman is a registered occupational therapist, senior lecturer and program coordinator of the occupational therapy program at Jönköping University, Sweden. She took her PhD in 2012 with the thesis ”Conceptualizing life balance from an empirical and occupational therapy perspective”. In this, she explored the concepts “life balance” and “occupational balance” from the perspectives of working adults and in relation to occupational therapy. Her research interest concerns the relationship between what people do, what they think about what they do, and health and well-being. This encompasses all levels - from the individual’s health to the global consequences of human everyday activities. She is also interested in issues of justice and sustainable development.One of Petra Warman’s research areas relates to occupational balance i.e. people’s perceptions of their amount and variation between different activities in everyday life. She is one of the developer of the instrument Occupational Balance Questionnaire (OBQ) which measures self-rated occupational balance.
Please find here the Conflict of Interest form.
Nick Ward
Dr
Nick Ward is a Reader in Clinical Neurology and Consultant Neurologist at UCL Institute of Neurology and The National Hospital for Neurology and Neurosurgery, Queen Square. He is lead
Dr
Nick Ward is a Reader in Clinical Neurology and Consultant Neurologist at UCL Institute of Neurology and The National Hospital for Neurology and Neurosurgery, Queen Square. He is lead
of the first dedicated upper limb neurorehabilitation programme in the UK. He also runs a research programme using structural and functional brain imaging to understand the mechanisms of recovery of movement after stroke so that we might predict both optimal treatments of upper limb impairment and long term outcomes after stroke. He is Co-editor of the Oxford Textbook of Neurorehabilitation and is Associate Editor of both the Journal for Neurology, Neurosurgery and Psychiatry and Neurorehabilitation and Neural Repair.
Please find here the Conflict of Interest form.
Please find here the Conflict of Interest form.
