Gene People Leadership Symposium 2025: Evidence

The Gene People Leadership Symposium 2025 will be held online on 23 January 2025, 13:00-16:30.

The theme of Symposium is Evidence.  This increasing need for evidence of all kinds – real world evidence, registries, clinical trials and so forth – means that understanding and being comfortable with evidence is crucial for our community.

We are delighted that the Symposium will be chaired by Dr Melita Irving FRCPCH of Guy’s and St Thomas’ NHS Foundation Trust. Confirmed speakers include Parexel, the Office of Health Economics, and Genetic Alliance UK with others to be announced soon.

This Symposium is for patient organisations, genetic counsellors, students, researchers and clinicians who will attend free of charge. Charged for tickets will be available to industry delegates.

After the event, a short report outlining the major messages and themes from sessions will be published. Sessions will be recorded and shared with delegates after the event as agreed with the speakers.

We aim for the Symposium to be a moment of celebration on an often fraught and difficult environment. The Gene People Awards will be announced during the online event to celebrate the work of patient organisations.

Rare Revolution Magazine is the media partner for the Symposium, and we are grateful for their support.

The Symposium will take place online. Gene People is grateful to the Association of the British Pharmaceutical Industry for hosting the event.

The need for evidence is increasing throughout the system; join us to hear about recent developments and the current landscape.


 

Fees to attend:

  • Condition-specific support groups  - FREE
  • Researchers - FREE
  • Students - FREE
  • Genetic counsellors - FREE
  • Other NHS staff - FREE
  • Medicines Industry - £200 to be paid via invoice. 


 

Our Keynote Speakers

Dr Melita Irving
Consultant, Clinical Genetics
Guys' and St Thomas' NHS Trust

Rachel Smith 
Global Head of Rare Disease
Parexel

 

Our Media Partner - About RARE Revolution 

RARE Revolution is an independent not-for-profit publishers dedicated to elevating the voice of the rare disease community through its magazine, online presence, disease awareness campaigns, patient engagement projects and social media. It produces high-quality articles and campaigns to support disease awareness and education across stakeholders, sectors and geographies. Featuring compelling voices and leading emerging conversations, RARE Revolution plays its part in turning the tide for rare disease. 

To find out more about joining the #RARERevolution visit rarerevolutionmagazine.com or contact the team at hello@rarerevolutionmagazine.com

 

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